| | Claire House | Hope House | Dougie Mac(donna Louise) | Francis House |
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| Location |
Wirral |
Oswestry |
Stoke-on-Trent |
South Manchester |
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| Where do you accept patients from |
West and South Cheshire (Would accept from other areas if suitable) |
All of Cheshire |
East and South Cheshire |
All of Cheshire |
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| Ages of patients accepted (Up to day of birthday) |
0-25 accepted
<18 years: new referrals accepted for palliative and end of life care only |
0 - 18 |
Children 0 -18 |
0 - 18 (can be flexible) |
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| Antenatal and Neonatal Support |
Designated and commissioned perinatal service for C&M |
Yes |
Yes |
Often not needed due to local services |
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| Eligibility Criteria |
Life limiting or life-threatening condition - considered at a monthly referral panel to identify eligibility for group 4 and child and family needs. Service offer will be planned respite or planned day care or groups. All perinatal and urgent referrals for end of life care are accepted |
Under 18 Accept life limiting condition, not going to reach adulthood. Don’t accept invasive ventilated children at any time but will accept non-invasive. Start transition process 14 – 18 |
Children's - Accept life limiting condition and not likely to reach adulthood Young adults – complex disabilities |
Life limiting or life-threatening condition. No Upper age limit – stay with as long as needed. |
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| Hospice Beds |
8 beds – 5/6 planned and 2/3 unplanned |
6 beds pre planned respite 1 complex or end of life |
8 for children
5 for young adults |
2 houses for children and young adults
14 beds in total (7 for children and 6 for young adults, 1 specially equipped room)
|
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| Residential Respite (Short Breaks) |
14 nights per year in blocks of 3 or 4 nights as well as unplanned emergency respite Young Adults – 2 weekends per yea |
Yes |
Young adults only one weekend a month |
Yes |
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| Day Respite (Short Breaks) |
Yes |
Yes |
Yes |
Yes |
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| Step Down Care Offered |
As long as they meet the eligibility criteria |
yes |
Would consider step down care if resource allowed |
No |
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| Hospice at Home /Domiciliary Care |
7 days a week 8 - 5 |
No |
Provide respite in home but not on a 24/7 basis, only 9am – 5pm |
Can offer 5 days over 7 – flexible hours to work with other services |
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| 24/7 end of life (Home based) |
Rapid Response Team led by nurse consultant |
No
Work with community team to support with this subject to commissioned service |
No
Work with community team to support with this subject to commissioned service |
No
Work with community team to support with this |
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| 24/7 end of life (Hospice based) |
Yes |
Yes |
Yes |
Yes |
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| Emotional and practical support, including advocacy |
Clinical Psychologist (from June 23) Offer to whole family |
Offer to whole family |
Offer to whole family |
Offer to whole family |
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| Bereavement support |
Offered at home and in Hospice Setting. Dedicated Butterfly team to support families both at hospice and at home post death for 7 days, incl. specialist cooling equipment |
Yes |
Yes |
Bereavement support, Emotional Support and Psychotherapy Support available to existing families |
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| Parent Support Services / Counselling services |
Yes |
Yes |
Yes |
Yes |
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| Parent Support Groups |
Yes |
Yes |
Yes |
Yes |
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| Sibling support services/groups |
Yes |
Yes |
Yes |
Yes |
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| Activities and Play (for child) |
Yes |
Yes |
Yes |
Yes |
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| Complementary Therapy |
Yes: 2.4 Comp therapists provide a range of services for all care and family support services hospice/ home |
No |
For children, young adults and families |
No |
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| Physiotherapy |
Yes |
Yes |
Yes |
Yes |
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| 24 Hour Medical/Nursing Support |
Hospice and 24 hour symptom management and end of life access via Rapid response team Nurse consultant/ Nurse specialist support 24/7 |
No
24 hour access to telephone support/advice Medical support not available 24 hours
|
No
Nursing support and advice for children available. No medical support 24 hours (CAU at local trust if medical is needed)
|
24 hour nursing and GP support |
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| 24 hour Telephone Advice Services |
Yes |
Yes |
Yes |
Yes |
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| Access to Equipment (any issues?) |
Specialist equipment normally through charitable donations |
Support to get access to equipment |
Yes |
Support to get access to equipment |
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| Access to pharmacy |
This is done through local hospital and SLA |
This is done through local hospital and SLA |
Order stock drugs from local hospital. SLA with acute trust |
Pharmacy visits twice a week and on call service |
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| 24 hour Access to spiritual care? |
Yes |
Yes |
Yes |
Yes |
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| Provision of specialist education and training to families |
Yes |
Provide some training and support to families |
Bespoke training for families if required |
No |
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| Provision of specialist education and training to professionals |
Yes |
By request |
Yes |
No |
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| Bereavement Suite |
Butterfly suite (post death care/ support) |
Snowflake Room and cool blanket and cuddle cot |
Bereavement suite in Garden Room and post death support |
3 Bereavement Suites (Rainbow Rooms) – can stay until funeral |
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| Symptom Management |
Yes |
Yes |
Yes |
Yes |
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| Respite for NonInvasive ventilation |
Yes |
Yes |
Yes |
Yes |
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| Respite for Invasive Ventilation |
Yes |
No |
Yes |
Yes |
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| Other |
• Joint Palliative Care Consultant with Alderhey
• All nurse verification of death |
|
|
13 beds separate residential house for young adults whose parents can no longer care for them |
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